Michael J. Bowler

The Writings of Michael J. Bowler

  • Home
  • Books
  • Screenplays
  • About
  • Blog
  • Contact
  • Media

All-Star Dream Cast for SPINNER

October 10, 2016 By Michael J. Bowler 2 Comments

As part of the YA Scavenger Hunt, I was asked to create a Dream Cast if my book, Spinner, was made into a film. Since the Hunt is over, I can share this on my own blog along with an “interview” written for the fictional Mark Twain High School newspaper created to support the initial release of the book. The interview introduces the main protagonists and reveals the ignorance special ed kids face on a daily basis. Feel free to comment on either the Dream Cast or the interview, especially if you have read the book or know kids we label “special ed.” Labels belong on food products, not people.  I think all of us want to be seen as ourselves with unique qualities and abilities, but this country has an obsession with labels. Spinner is a horror thriller aimed at teens and adults who like a page-turning story featuring protagonists seldom seen as heroic because they have been slapped with a label that narrowly defines them. Check out the book on Amazon or Barnes and Noble and meet some unforgettable characters.

 

44491843 - dead tree in a full moon night

A Revealing Interview

by Karina Martinez for

The Daily Cougar

 

It is a somber day as I approached the lunch table. This group of SPED students (Special Education) has experienced a tragic loss – their teacher was killed last night, run down by a truck outside her apartment. We’ve never had such a tragedy at Mark Twain High. Ms. Lorna Ashley had been teaching Special Education for four years and her class was always self-contained. That means the students were with her the whole day, for every class. Her current group consists of six male students, all gathered around the most beat-up of the lunch tables not far from their classroom. I have my faithful photographer with me – Jasmine Rodriguez – and we both try to look professional as we stop at their table. These kids have a reputation around campus for being weird and usually nobody ever goes near them. One of the boys is in a wheelchair, but the others look normal. You’d never know they were Special Ed.

I introduce Jasmine and myself. The boys stare at us like we’re from Mars or something. The white haired boy, Alex, the one in the wheelchair, has these amazing blue eyes that almost make me forget what I was there for. I explain that I write for the school paper and we’re doing a story on Ms. Ashley’s death.

“Why?” That comes from the light-skinned black kid named Java. He glowers and looks suspiciously at the camera Jasmine holds.

“Well, we’ve never had anything like this happen before,” I explain, “and it’s big news when a teacher gets killed.”

Israel, dark hair, really handsome, blurts out, “What the hell?”

That catches me off-guard. “Well, I just mean, it’s something the school paper can’t ignore.”

Jorge, tall and thin with unkempt black hair, hands me a piece of paper with no expression on his face. It has a big red “V” scrawled on it. I exchange a nervous glance with Jasmine, who stifles a giggle, and then turn back to Jorge.

“What’s this for?”

“We’ve never had anything like this happen before,” Jorge says in a monotone voice, repeating my words to me. I confess, I’m feeling creeped out.

Roy, the skinny white kid with snakebite piercings in his lower lip brushes hair from in front of his eyes. Those eyes look sad to me. “Ms. Ashley was a great teacher. She was like a mom to us. That’s all you gotta write.”

There’s a Vietnamese kid named Cuong at the table, but he just plays with a Gameboy like we’re not even there. Alex stares at me with those blue eyes and I feel like he’s looking right through me. I shiver. He’s the one our readers most want to hear from because he’s the most disabled kid we have at Mark Twain, being in a wheelchair and all. So I focus on him.

“So, um, Alex, do you have anything to say about Ms. Ashley?”

Alex’s intense look doesn’t let up at all. His white blond hair falls across his forehead and back over his collar. His serious expression doesn’t hide his good looks. If he weren’t crippled he’d be hot enough to date.

“Like Roy said, Ms. Ashley was the best teacher I ever had,” Alex answers, his voice filled with sadness. “She never got mad at us when we couldn’t do something. She just helped us find some other way. She loved us.”

I take notes as he speaks, still feeling those deep blue eyes looking through me. “So, you guys are Special Ed, right?”

“Yeah, so?” Java says. He’s big and buff and wears one of those tight shirts like pro football players. He looks scary.

“Well, our readers don’t know much about being special ed. Are you guys like, retarded?”

I ask it innocently because that’s usually what special ed means, but Java’s face turns stormy.

“We are not retarded!” Israel shouts. Other kids milling about look over curiously. Now I feel embarrassed.

“Sorry,” I say. “It’s just, well, that’s what normal kids think about special ones.”

“We are normal,” Roy says. “For us. Right, Alex?”

Java looks ready to explode so I turn to Alex.

“Roy’s right,” Alex says, his voice tight with anger. “We don’t read or write good, but we’re the same as you.”

“Except you can’t walk?”

“The hell?” Roy blurts. He stands and towers over me. “Get outta here! You don’t know nothing!”

Alex places one hand on Roy’s arm and that calms him a little. He looks at Alex and Alex shakes his head slightly. Still angry, Roy re-seats himself.

“No, I can’t walk,” Alex replies, those eyes fixed intently on me.

I try to steer this interview into a non-threatening direction. “What’s it like, not to walk?”

“Shut up!” Israel says loudly. He can’t seem to speak in any tone other than loud. He draws more attention to me than I want.

Then Jorge says, “Shut up,” and sounds eerily like Israel. I shiver again.

“It’s okay, Izzy,” Alex says. I think he’s probably been asked that question a lot because he just sighs and looks up at me from his wheelchair. “What’s it like to walk? I never have so I don’t know.”

That answer floors me and I have no response.

“See?” Alex goes on. “Normal is different for everybody. Maybe you could print that and the kids around here might stop talking crap about us and calling me Roller Boy all the time. We’re not losers like everybody says. Roy could fix anything in this school that breaks down. And Java could kick ass on the football team ‘cept people keep calling him a dummy. He’s not. Not of us are. We’re just different.”

I’m trying to write down every word because it’s all so amazing and so unlike what I thought these kids were like. I guess I thought they were dumb because that’s what I always heard. I realize that this is the first time I ever interacted with them. Alex stops talking and I stop writing. The others are staring at me and I feel like I should say something, but don’t know what.  Then it hits me.

“Could I try out your wheelchair?”

“The hell?” Israel blurts, even louder.

Alex looks at me with open-mouthed surprise and I realize I didn’t ask the question very well. “I, uh, I just thought I could write a better story about what it’s like to be crippled if I sat in your chair and, you know, wheeled around a little.”

Roy leaps to his feet again. “Get lost. We’re not freaks and Alex ain’t crippled! He can do anything you can and more!”

Jasmine giggles beside me and I nudge her, trying to salvage this interview.

“It’s okay, Roy,” Alex says quietly. “Let her try.”

“Alex! She’s just messing with you.”

“No, I’m not, really,” I answer quickly. “I just want to feel what it would be like to sit all the time.”

Roy’s angry look makes me realize I said the wrong thing again. I’m really wishing Ms. Jacobs hadn’t given me this assignment. Alex touches Roy’s arm again in a calming way and pushes himself up and out of his wheelchair onto the bench so easily I think I gasped. His arms and upper body look pretty buff, but he moved so easily I’m shocked.

“Go ahead,” he says. “Try it out.”

I feel all of them mad-dogging me as I step forward and uncertainly sit in the chair. I try to push forward, but my feet on the ground get in my way.

“Your feet go on the footrest,” Alex says and points to it.

I look down and see where he’s pointing and place my feet there. Then I start wheeling around. It’s fun, I find myself thinking, almost like riding in a Go-Kart. Jasmine snaps some pictures of me in the chair and the SPED kids watching.

“How is it?” Jasmine asks.

Before I can stop myself, I say, “It’s fun.”

I spin around and head back toward her. Other kids standing nearby laugh and point.

“Let me try,” Jasmine says.

I hop out of the chair and she plops into it. Wheeling herself around in circles, she makes like she’s going to run into another kid standing off to the side. The kid lurches back and Jasmine laughs. All the students standing around laugh and point to Alex and his friends. I hear one of them say, “Hey, it’s Roller Girl.”

“This is so cool,” Jasmine gushes, and I catch Alex’s facial expression when she does. He looks like someone punched him. Those blue eyes look so hurt I almost feel like crying. I hurry to Jasmine.

“Give him back the chair.”

Reluctantly, she steps out of it and I wheel the chair back to Alex. He gives me a look that pierces my heart and I realize how hurtful what we just did is to him. He slides himself deftly into the chair and pulls his feet onto the footrest.

Roy steps up to me. He’s really mad. “You had your fun, now get the hell outta here and leave us alone!”

I step back as all of them stand up to mad-dog me. Even the Vietnamese kid stops playing his game to glower. I exchange a nervous glance with Jasmine, who hurriedly snaps a few more pictures.

“I, uh, well, thanks for talking to me,” I say uncertainly. “I’m, well, sorry about your teacher and all.”

Jasmine grabs my arm to pull me away. I can’t help but look into Alex’s blue eyes one last time. He looks so wounded. “I’m sorry, Alex, about the chair thing. See ya around.”

Alex doesn’t answer, so I turn to follow Jasmine away into the crowd. The other kids are still laughing.

 

Note: This is how I wrote up the article, but Ms. Jacobs decided not to run it. She felt it would embarrass Alex and his friends, and then she spent an entire period teaching us proper ways to ask difficult questions during an interview. I know I blew it, but at least I now understand that the kids we call Special Ed are just as human as I am, and I plan to treat them that way from now on.

 

https://www.amazon.com/Spinner-Michael-J-Bowler/dp/1511943084/ref=sr_1_12?s=books&ie=UTF8&qid=1476117182&sr=1-12&keywords=spinner

http://www.barnesandnoble.com/w/spinner-michael-j-bowler/1122482576?ean=9781511943086

 

Share this:

  • Click to share on Tumblr (Opens in new window) Tumblr
  • Click to share on Facebook (Opens in new window) Facebook
  • Click to share on X (Opens in new window) X
  • Click to share on LinkedIn (Opens in new window) LinkedIn
  • Click to share on Pinterest (Opens in new window) Pinterest

Filed Under: #WeOverMe, Disabilities, Diversity, Social Issues, Writing Tagged With: abilities, adoption, amreading, best friends, Chandler Riggs, character interview, Cierra Ramirez, disabilities, diverse, Dream Cast, Ethan Hawke, evil, Ewan McGregor, Fan Cast, Freddie Highmore, friendship, friendship goals, Gary Oldman, great power, honor, horror, integrity, invisible disabilities, Isaac Jin Solstein, James McAvoy, Julianne Moore, labels, learning disabilities, Levi Miller, Linda Blair, Mekai Curtis, mystery, Noah Centineo, orphan, page-turner, Raymond Ochoa, Scarlett Johansson, special education, SPED, spina bifida, supernatural, suspense, thriller, uniqueness, we need diverse books, wheelchair

Sports and the Hard of Hearing Child

July 21, 2016 By Michael J. Bowler Leave a Comment

soccer boy v2

As a child growing up with a significant sensorineural hearing loss and no hearing aids to assist me, I found life confusing and often embarrassing. Most of my humiliations came in the arena of team sports, whether it was little league, peewee basketball, or just a pick-up football games with the neighborhood kids.

I recently attended the Angel City Games in Los Angeles—track and field events for kids and adults with physical challenges. Some of the participants were in wheelchairs, some wore prosthetic legs and some were developmentally delayed. I was heartened to see how far we’ve come in making sports for kids with disabilities both accessible and enriching. I know there are also sports teams specifically for deaf kids, where the coaching is done via sign language, but I got to wondering if there have been accommodations made for hard-of-hearing kids who want to participate in team sports with non-hearing impaired kids, so I did some Internet searching.

Within the public school setting—in theory, anyway—there are assistive devices available. For example, in basketball, a red light can be installed behind each backboard that signals the end of a quarter. Portable loop systems with the coach using a microphone and the kid wearing a hearing device can facilitate communication between the two. These are similar to auditory trainers used in classrooms to augment the hearing of HOH students. The teacher wears a microphone and the child wears the headphone and in this way the teacher’s voice goes straight into the student’s ear. For football, there can even be a hearing aid within a modified helmet so the player can hear the coach more clearly. These are a few of the adaptations that are obtainable, assuming a school district will pay for them.

Having used auditory trainers with students, I saw that most kids don’t like to wear the headphones, especially if they are in a co-taught or a general education classroom because—no surprise here—they don’t want to stand out as “different.” I can attest from experience that kids tend to treat “different” as though it were some kind of disease, which is why kids who are “different” don’t want to call attention to their “differentness.” Sadly, the school system and our society still push conformity and sameness and “one size fits all,” so is it any wonder kids are reluctant to accept differentness in their peers?

Fifteen per cent of children between six and nineteen have a measurable hearing loss in at least one ear—approximately thirteen million kids. They have significant hearing loss, but are not deaf or otherwise “special needs.” Do neighborhood sports programs like the kind I was involved in as a child make any accommodations for these kids to play on their teams with non-disabled peers? That’s the more relevant question, I think, for parents who have a HOH child, because those are the kinds of programs most readily available.

My experiences as a child athlete were miserable. I probably misheard every instruction a coach ever gave me, especially if I was on the basketball court or out in right field for little league. In mishearing the command, I did something counter to what I was told to do and got royally chewed out for messing up. Needless to say, I was not popular on these teams because I always did everything wrong. A sensorineural hearing loss, in particular, makes human speech unclear or even, at times, garbled. In that regard, it’s not unlike an auditory processing deficit where the brain scrambles up words that enter through the ear and causes the child to respond in a way that might seem non sequitur, defiant, or outright stupid. I got the “stupid” tag a lot. And here’s the crazy part—I believed it. I believed I was stupid and inept because I did everything wrong. And I never associated my “ineptness” with my hearing loss because it was “invisible” and hardly ever mentioned by the adults in my life.

I doubt much would’ve been changed to accommodate me even if people were more cognizant of my disability because “one size fits all” was even stronger back then. So I simply came to the conclusion that I was stupid and clumsy and sucked at athletics and I ended up hating sports with a passion. Only in college did I become somewhat athletic. I took up running and weight lifting and swimming—activities I could do by myself or with a friend that didn’t involve a large team or an angry coach demanding to know why I did this or that stupid thing.

This brings me back to sports programs at local parks and YMCA’s and other venues that are not part of the public school system. In my Internet search, I found summer camps for deaf and hearing-impaired children, but could not find local sports programs or little league teams promoting accommodations for HOH kids. It’s possible that they will make such accommodations if a parent asks, but it seems to me such an important aspect of the program should be advertised, especially given the large number of children with hearing loss.

Even if a child has hearing aids, that doesn’t mean they will be effective for an outfielder, a lineman, defensive midfielder, or the power forward in a noisy, echo-filled gym surrounded by screaming fans. Most sports, especially baseball, have numerous hand signals coaches flash to players to bunt or run or hold up on a base. These are perfect for the HOH player. Even more specific gestures can be worked out between the player and the coach (and/or other team members) to ensure proper communication. It really isn’t difficult for a HOH kid to play sports as long as the coaching staff and other players remember that communication doesn’t have to be verbal.

Colored flags could help. For example, a red flag could mean move closer. To an outfielder this would mean move closer to the infield. For an infielder, it would mean move closer to the bag. A blue flag could mean the opposite—move farther into the outfield or away from the bag. Colored flags could work in most sports to mean whatever the coach and player decide they mean. Trust me when I say how much better my failed sporting life might have been if I’d had even this one simple accommodation.

I think parents advocate more for their HOH kids than in my childhood. It wasn’t that my parents intentionally ignored my disability. It was just that the disability was invisible and easy to forget about. As noted above, I forgot about it myself, even as a coach or my mom chewed me out for not doing something right, or for not listening. I was told more than once, “You can hear when you want to.” This was not true. A HOH child only hears what his or her limited hearing allows. Nothing more or less. Even “listening harder” won’t clarify speech if the other person is too far away or there is background noise or the other person isn’t facing the child. Sometimes just the pitch of a person’s voice makes clarity problematic. Like all kids with disabilities, I instinctively compensated—which for me meant reading lips. I did this unconsciously and became so good at it I could almost follow a TV show with the volume off and still understand most of the dialogue. As long as the actor faced the screen, I “heard” him or her.

Hearing loss is a physical disability—it just doesn’t involve visible damage to the body or limbs. Yes, hearing aids are helpful. But they are limited. Parents and coaches and team members can easily make the small accommodations I mentioned, and many others of their own devising, that will guarantee the HOH child has a positive experience. The child will not only feel like an equal member of the team, but might also blossom into an outstanding athlete. I doubt I ever had such innate ability, but my experiences were so demoralizing I never attempted to find out. As events like the Angel City Games prove, we have gotten better at including disabled children in athletic competitions. However, let’s not forget the invisible disabilities like hearing loss or auditory processing. These kids want to play, too.

1st Year Little League
My first year in little league. I’m in the back row on the far right and I look happy at starting this new adventure.
2nd Year Little League Team
Here I am with my second (and thankfully final) little league team. I’m in the back row, fourth from the left, much bigger, but with the same hearing loss that made the first season so abysmal. As you can plainly see, I look like I want to be anywhere else but on this team.

Share this:

  • Click to share on Tumblr (Opens in new window) Tumblr
  • Click to share on Facebook (Opens in new window) Facebook
  • Click to share on X (Opens in new window) X
  • Click to share on LinkedIn (Opens in new window) LinkedIn
  • Click to share on Pinterest (Opens in new window) Pinterest

Filed Under: Disabilities, Diversity, Raising Healthy Kids, Social Issues Tagged With: acceptance of differences, accommodations for hard of hearing children, adaptive sports for kids, Angel City Games, Angel City Sports, childhood trauma, differentness, hard of hearing children and sports, hearing but not understanding, hearing loss, hearing loss in children, invisible disabilities, little league, neighborhood sports programs, surviving childhood hearing loss

Email Sign Up

Connect with Me

  • View michaeljbowlerauthor’s profile on Facebook
  • View michaeljbowler’s profile on Twitter
  • View michaeljbowler’s profile on Instagram
  • View michaelbowler’s profile on Pinterest
  • View UC2NXCPry4DDgJZOVDUxVtMw’s profile on YouTube
  • RSS - Posts

© 2025 Michael J. Bowler · All rights reserved · Privacy Policy · Cookie Policy

 

Loading Comments...